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Tag Archives: social emotional support

HELP- There’s a monster in my toybox!

06 Wednesday Feb 2013

Posted by kolubcbad in Autism, Behavior Analysis, Community, Early Intervention, Education, play, Rett's, Social Interaction

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autism, behavior support, early intervention, individualized, play, social emotional support

Part 1 of Series: Helping caregivers and teachers support children to meet fearful challenges

Shannon’s Story

Shannon and Gina sat in a free play area near their preschool teacher. “SQUAWK!” came the loud animal sound when Gina pushed the button on a new toy. As the toy noise grew louder, Shannon’s eyes opened wider and wider until she froze, a look of sheer terror on her face. She started to back away and wailed, sinking onto the floor and crying.”Oh no,” gasped her teacher. “Put that toy away!” While Shannon cried, their teacher pulled Gina aside and said “I’m sorry, but Shannon is afraid of that toy. Next time we will remember to play with it when she’s in another room.”

Devon’s Mom’s Dilemma

Devon and his mom Jenny walked down the sidewalk with their next door neighbors. As they neared the playground, Devon suddenly grabbed his mother’s skirt tightly and shrieked. “NO BIRDIES! NO DOGGIES!” At this, Jenny’s face grew red as she picked up Devon and held him tightly. She looked at her neighbor helplessly and apologized: “I’m just so sorry… We can’t go any further with you. He’s been doing this every time. He has this issue with ducks and dogs and birds now. I think even if we don’t see one he’ll be afraid one might get him.”

Toward more supportive, long term strategies

At first, it may seem supportive to shield a child from their fears.

But both teachers and parents want and need solutions that will ultimately help children face and overcome challenges. So when there is a question, especially when a particular strategy feels good or soothing or produces relief in the short term, it’s a good idea to ask ourselves, “is this procedure also supportive in the long term?”

If not, how can Shannon’s teacher and Devon’s mom learn a more therapeutic approach? And why is that important? Let’s review these scenarios again, to better understand why and how to take a supportive long term approach. What might Shannon’s interaction with the toy, and Devon’s interaction with park creatures, have in common?

First, these scenarios are similar in how they are resolved.

In both interactions, a pattern is being established: the child first encounters a fear, or “fear inducing stimulus”, and then others respond by helping the child to escape or avoid it.

Second, these scenarios are similar in how they affect other people.

From the perspective of Shannon’s peers, her inability to play with that toy meant that they couldn’t either, at least not when she was around. From the perspective of Devon’s neighbor, the neighborhood kids couldn’t play with Devon in a park. This concept, the idea that Devon can’t play in the park, and that Shannon can’t play with toys that make animal sounds, limits interaction opportunities. It also risks changing the way peers think about approaching Shannon and Devon.

Third, these scenarios have similar “reductive” effects on the children’s “repertoire” or world. Have you ever met a family member or caregiver who says, “we used to love to do ___” but we can’t anymore”? Perhaps a family used to go to the movies, or out to dinner, or have friends over, or go to museums, or go hiking. During the initial conversation with families, that blank is filled in by all the things they need to avoid now because of fears of how people will react, fears that it won’t go well, fears that it will be too difficult, embarrassing, or noisy. Often those fears are REAL at the time! Perhaps people DID stare and talk at church when a family’s child loudly refused to stop standing on the pew. Perhaps all the teachers and mothers DID stare and talk in the parking lot as a child disrobed in public and threw a tantrum before leaving the store. Perhaps it WILL be difficult, embarrassing, or noisy. But keep reading. We can do this together.

Fourth, understand it’s a cycle: handling scenarios by allowing “fear habits” to persist, allows learners to skip learning opportunities and continue to repeat old harmful habits instead.

If Shannon and Devon can’t play with certain toys or in certain places, they have reduced opportunities to learn about those things and places, and no opportunity to learn that they are NOT scary.

Fifth, if these scenarios become habits, they make it more difficult for the child to handle or face similar or other fears in the future. These situations do not teach the child how to be more successful in coping with scary, new or different events.

Bottom Line: Instead of stopping or thwarting learning opportunities, we can expand them.

Come back Friday to learn how!

Using the Reverse Social Story during the Holidays

14 Friday Dec 2012

Posted by kolubcbad in Uncategorized

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Tags

reverse social story, social emotional support, social story

Q&A Series: Parents ask about social emotional support

Today’s Q&A: How can a reverse social story be part of family behavior support around the holidays?

A: A reverse social story helps others relate to our loved ones.

A reverse story is related to the “social story”, but it is not one that your child will use. Instead, it is one designed to help OTHERS relate to your child or loved one.

What’s a “reverse social story” for?

Cusp Emergence uses Reverse Social Stories to address physical, behavioral, social, emotional, memory or cognitive, or a combination of these needs.

A Reverse Social Story facilitates relating to your loved one by using a combination of words and pictures, depending on the audience, that tell a story.

In this story, you can

  • Highlight what your loved one is great at doing
  • Help others understand how to support your loved one’s special need or challenge
  • Name specific ways your child or loved one can be involved and participate in meaningful events and interactions
  • Review specific challenges your loved one faces, and describe to others how to:

talk about these challenges

prevent unsafe interactions

redirect challenging interactions to become more therapeutic and supportive

provide supportive environments during special times or events including:

holidays, parties, family emergencies, babysitting or respite care, trips to the community, transitions, or unexpected changes

How can circles of friends and acquaintances use the “reverse social story”?

Ways people have benefited from the reverse social story include:

  • Family members of a child or family member with special needs read it to prepare for his holiday visit
  • The boss and co-workers of a woman whose son had special needs, read it to prepare for his attendance at a company picnic
  • The preschool staff at a child’s new school read it to prepare for his transition into their classroom
  • The family members of a woman with Alzheimer’s used it to share their mom’s preferences, needs, and locations of special items, with new nursing home staff.
  • The young cousins of a child with Autism learned in advance how to include him in play and conversations
  • The aunts and uncles of a little girl with Rett’s syndrome learned ways to prevent unsafe behaviors while babysitting while visiting over the holidays

Who writes a “reverse social story”?

We can help…

As a behavior analyst and social emotional support provider, Dr. Kolu facilitates writing Reverse Social Stories for clients. Cusp Emergence offers workshops on Writing and Using your Family’s Reverse Social Story.

Or you can do it yourself.

After a brief training on how to write a Reverse Social Story, one of our clients (a mother of a young child with special needs) wrote one of the most useful, beautiful Reverse Social Stories we’ve ever read.

Coming Next: What to include in your family’s “reverse social story”

NEW Q&A Series: Parents ask about social emotional support

06 Thursday Dec 2012

Posted by kolubcbad in Uncategorized

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Tags

autism, behavior support, holidays, social emotional support

Stay tuned for posts in our new Q&A series, “Parents ask about social emotional support”.

Today’s Q&A:

Q. How can behavior support help families around the holidays?

A. Use this simple strategy: Provide extra practice with safety instructions

Then, stay tuned for more Q&A on topics such as supporting holiday travel, keeping behavior support consistent during the holidays, and more. 

Finally, check back often to see the Q&A.

 

Want to suggest a Q&A topic? Send a comment or call us at 720.263.CUSP. 

School of Play

04 Tuesday Dec 2012

Posted by kolubcbad in Autism, Behavior Analysis, Early Intervention, Education, play, Social Interaction, Uncategorized

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autism, behavior management, language, leisure skills, play, school of play, social emotional support

School of Play ©
Our school of play division provides one-time, brief, or long-term play or leisure skill-based individualized client supports, training, and education.

WHO can benefit?
Groups: Schools, classes, churches, businesses (gyms, pediatric doctors or dentist groups, therapists)
Families: Families affected by behavioral, developmental, social, emotional, or other challenges
Individuals: Children, staff, teachers, administrators

WHEN?
Our clients can benefit from School of Play © services whenever:

-A child gym owner sees staff struggling to help young mothers engage their children in play, interaction, or language, and enjoy the gym activities at the same time
-A community or church member runs a play group in a church or gym, and is not sure what to do differently to support new students with autism
-A community or church play group is not sure how to support children with language delays
-A parent needs the babysitter to manage behavior more effectively when supporting the family’s children
-A parent’s child with autism doesn’t know how to play with his siblings
-A family’s two year old with autism doesn’t like to play with his parents
-A family’s or organization’s group of therapists is great at 1:1 instruction, but they need help getting children to interact with each other
-An organization’s therapists are highly skilled at discrete teaching, but provide less effective naturalistic teaching

WHY does it work?
Cusp Emergence provides play and leisure skill support that is:
-Compatible with IFSP or IEP goals
-In some cases, able to be funded by a state’s early intervention services if the client qualifies
able to improve family or team interaction
-supportive of social, emotional, or behavioral wellness
-provided in the community or home setting
-consistent with research proven methods with demonstrated effectiveness
-administered by qualified, educated, trainers with extensive experience collaborating with parents, educators, therapists and community members

HOW can clients benefit?
-Learn to arrange environments to make appropriate effective language and communication more likely
-Learn to arrange environments to support play
-Learn to teach staff, babysitters, community, or family members to provide supportive environments
-Learn to arrange environments that prevent behavior challenges
-Receive support from our School of Play division in your group or home

HOW does it work?
-An initial consultation takes place to discuss the family’s or group’s needs
-Next, a workshop or future education is planned based on individual needs
-Follow up support is available for families or groups on a schedule determined together with the client

(click here to check out Building Your Workshop)

Build-Your-Own-Workshop

04 Tuesday Dec 2012

Posted by kolubcbad in Autism, Behavior Analysis, Community, Education, Uncategorized

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autism, early intervention, education, family, play, social emotional support, workshop

Cusp Emergence is excited to offer a Build-Your-Own-Workshop feature to families, groups, and communities.

1. Consider what your workshop will address, and why you need a workshop.

  • Need to learn general ways to provide social, emotional, and behavioral support?

  • Need to practice behavior management for specific behavior challenges?

  • Need to teach your family or group about managing a particular behavior challenge?

  • Need to support a student or family or community member with cognitive or developmental challenges?

  • Want to know more about how social-emotional and behavioral wellness relate to physical health?

  • Want to learn a particular technique (for example, for teaching skills or shaping language, appropriate behavior, play, or social interaction)?

    2. Think about who will participate, where you’d like the workshop, and how long your group would like the workshop to be

    3. Contact Cusp Emergence!

CONTACT CUSP EMERGENCE:
720.263.CUSP

Social Emotional Support: Part 3 (How does it work?)

15 Thursday Nov 2012

Posted by kolubcbad in Autism, Behavior Analysis, Behavioral Cusp, Community, Early Intervention, Social Interaction, Uncategorized

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autism, early intervention, individualized, intensity, S/E, social emotional support

Social Emotional Support should be practical, and fit into a child’s family routine or team involvement.

How does Social Emotional Support work with other therapies? Does it replace Speech Therapy?
Social Emotional Support can complement, but does not usually replace, therapy by an experienced, licensed and trained speech therapist, especially if the child is diagnosed with an issue that would benefit from Speech Therapy. Instead, S/E can facilitate other therapies the child is already receiving, and brings a therapeutic perspective that can enhance the benefit of Speech, Occupational, Physical, or other supports. For example, some children may use dangerous or unsafe behaviors, or escape from unbearable or undesirable situations after inappropriate behavior. Other children benefit from learning how to “turn down” or “turn up” sensory stimulation, without using unsafe behavior. They can learn safe ways to express that there is too much, too little, or uncomfortable stimulation. We can help other therapists to integrate behavioral wellness into their sessions, and how to incorporate motivation and timing and behavior techniques into their strategies. Note: Some of the most powerful technologies in teaching children with autism (and diverse learners worldwide) have been generated by behavior analysts who collaborate with, or have backgrounds in, speech and language therapy. (PECS, or the Picture Exchange Communication System, is a good example of this.)

How do we do it?
Step 1: Assessment
A behavior analyst as S/E provider can assess a child’s strengths, challenging behavior, and family’s concerns, then generate individualized strategies to support the child’s growth. Often an assessment called an FBA, or Functional Behavior Assessment, is conducted over a couple of weeks to understand the reasons and ways that the environment is contributing to the child’s challenges. We learn what situations are most difficult and how to address them by strengthening more appropriate and successful alternative ways for learners to meet their needs.

Step 2: Collaborate
Next, we team with the child’s family and other providers or community members. We use a collaborative strength-based service model to determine measurable goals the child will meet by learning new skills, behaviors, and new ways to use their strengths. Then we discuss ways (strategies) that will be used to get there.

Step 3: Teach family and therapists to use consistent strategies; monitor strategy effectiveness
Collaboration results in setting measurable goals and developing a plan listing specific strategies families will use to meet the goal.

Families often ask whether we use individualized strategies or apply the same kind of support to every child.
We use individualized support. There are also many core “evidence-based” strategies that we use because research and practical application consistently shows they benefit children with autism and related challenges. Read more about the EI Colorado recommended strategies here.

Step 4: Support the child’s transition out of early intervention.
This step involves thoughtful planning for how the child and family will move to the next steps and environments as needed. Local agencies partner with schools to provide families with options for continued therapies in preschool if needed. Social emotional support providers can work with families to put the currently effective strategies in writing to share with important new people in the child’s life. Some families benefit from continued consultation from a BCBA, who can help teach preschool teachers and therapists how to keep making progress by providing continued individualized support based on the child’s needs. (Check out a previous related post on supporting a child’s transition).

Social Emotional Support and Intensity of Behavior Analytic Intervention
Although intensive intervention is recommended and effective for building skills and relationships with children with autism, the intensive aspect of intervention is not characteristic of the time-limited S/E support under Early Intervention Colorado’s guidelines. Instead, this model provides a brief assessment as needed followed by an hour or so of weekly therapy with the child that consistently includes caregiver education. By focusing on engineering change in families and team members, we set caregivers up to learn preventative successful techniques to support their child’s speech, motor, play, self-help and social skills.

Social Emotional Support: Part 2 (Where and how)

15 Thursday Nov 2012

Posted by kolubcbad in Uncategorized

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Tags

BCBA, BCBA-D, behavior analysis, community-based, cusp emergence, S/E support, social emotional support

Social Emotional Support: Where? How?

Note: This segment is Part 2 of a Series on Social Emotional Support by a Behavior Analyst

Where?

Social Emotional Support can be provided in the home and in the community, wherever it fits in to a child’s and family’s life. Often we identify, with the family, that there are a few especially challenging environments or places. We educate and collaborate. By using modeling and supportive feedback directly in those places, a team can support a family planning to re-enter environments and situations they have been avoiding due to difficulties coping with challenging behavior, social, or communication needs. Sometimes we educate in the grocery store, we practice going to story time at the library, or we meet a family in a gym. We go where the difficulties are, so that the teaching is effective and the family learns to implement the strategies when therapists are NOT there. We also teach in the family’s home, at times of day that the family needs support. Some families benefit from a weekly afternoon play session, while others benefit from sessions that target particular routines or tasks. Sometimes we provide support during a meal, or during a specific self help routine.

Why do it in the community?

Generalization can mean a child learns to do things s/he first practiced at home, in other places, with other caregivers, and in other situations. Generalization will not always happen by itself. Planning for generalization is important, and is almost always a big part of what the behavior analyst does.

Some places we have provided Social Emotional Support:

  • family’s home
  • church daycare
  • community daycare
  • community gyms
  • community children’s museums
  • a local library
  • local parks
  • schools
  • doctor’s offices
  • dentist office waiting room

How is Social Emotional Support funded?

In Colorado, families whose children qualify for Early Intervention services could receive Social Emotional support at no cost until their child is 3 years old, by Board Certified Behavior Analysts or other specialists authorized to be providers. In situations when the child does not qualify by the state definition but still has needs in this areas, some families choose to private pay and contract with an agency or provider who can meet their needs, or to enroll in parent education or training that can help. Grants may be options for some children on waiting lists for specific autism waivers through Medicaid, or for children with significant needs. Grants can fund co-pays for children whose insurance reimburses ABA coverage. Some providers offer sliding scales for families without insurance, and some agencies offer payment plans.

Note: Cusp Emergence offers Dr. Kolu’s Preventative Environments Training to the community, and provides social emotional education programs to preschools, churches, and other community businesses. We also offer a sliding scale to families in need, and can train family members or friends to act as therapists. University students, caring family members, and babysitters can all be trained to be excellent therapists who supplement a child’s program. 

Social Emotional Support: Part 1 (Who, what, and when)

10 Saturday Nov 2012

Posted by kolubcbad in Uncategorized

≈ 1 Comment

Tags

autism, BCBA, BCBA-D, behavior challenges, board certified behavior analyst, feeding difficulties, social emotional support

Social Emotional Support: Who, what, and when

Note: This segment is Part 1 of a Series on Social Emotional Support by a Behavior Analyst

 

First, here are some ways Dr. Kolu’s clients have benefited from Social Emotional Support:

Individuals

  • A client with Rett’s Syndrome learned new ways to greet peers, ways to play with toys, and how to eat with a spoon and fork

  • A client with severe autism learned to pull up his pants and participate more fully in dressing himself

  • A client with mild autism learned to ask friends to play

  • A client with Rett’s learned to use a button to request food and later to make choices 

  • A client with Angelman’s Syndrome learned to request everyday items by pointing instead of banging his head

  • A client with Autism learned to look at his family members, talk, and practiced preschool readiness skills

  • A client with PDD-NOS learned to use words instead of hitting others and screaming

  • A client with severe anxiety and autism learned coping strategies for the playground instead of running screaming away when other children or dogs arrived

Families

  • A family with a client with autism learned ways to include their child in church and community outings

  • A family with two children with autism learned to provide deep pressure regularly, instead of after self injurious behavior. This decreased head banging and increased hugs at appropriate times!

  • A family with one child with autism learned to encourage language for the 2 year sibling (who was not making sounds at the beginning of therapy).

  • A family with a child with autism and other genetic disorders learned to expand the interests of their child beyond a single video and book to many interactive toys

Community Members

  • A daycare staff learned to teach students how to respond to their peer who was challenged with Rett’s Syndrome. Children learned to wave, give high fives, and exchange toys or crafts materials, while the student with Rett’s learned to wave back, give high fives, and play instead of pulling their hair.

  • Montessori school teachers learned to encourage more independent and healthy eating habits for a learner who struggled with food refusal.

  • Preschool teachers learned ways to include a child with autism in play with his neurotypical peers

  • Preschool therapists learned to manage behavior, incorporate social interaction, and use both timing and motivation more effectively in their SLP, OT, and PT sessions with a child with Angelman Syndrome. After introduction of a behavior analyst to the team, all therapists were educated in how to use consistent strategies to facilitate their individual specialty work with the child. Disruptive and aggressive behavior decreased as appropriate alternatives were supported by the entire team’s strategies.
  • Preschool teachers, therapists and family members learned ways to prevent inappropriate, unsafe, and injurious behavior.

What is Social Emotional Support? Who benefits from S/E?

In this context, S/E support is a specific type of support provided to children birth to 3 who experience delay, or risk for delay, in the area of social emotional development. For example, I support many families whose children experience language delay, difficulties learning to interact with others, or using self-help skills at appropriate developmental pace. Children in these families can be at risk for S/E delay when behavioral challenges grow into barriers that affect the family’s interaction, or prevent the child from interacting fully with his or her community. However, early social emotional support builds a foundation of preventative environments that foster behavioral wellness. 

Social Emotional Support for children with Autism… and children without Autism

Other families I support are raising a child diagnosed with Autism or related challenges, or are affected by Autism elsewhere in their family. The presence of an Autism Spectrum or related challenge can make it more likely that children and their siblings could benefit from therapeutic Social Emotional Support. However, we can also support typically developing children whose families have faced traumatic or difficult experiences that result in challenging interactions between children and family members, difficulties eating, talking, or playing with others. Social emotional support can help families teach a child healthy ways to express his or her feelings, communicate his or her needs and wants, and learn from the natural environment. At the same time, family members receive support and education to practice proactive, preventative, supportive strategies for future challenges.

Social Emotional Support in Colorado

In Colorado, families with young children (0-3 y/o) affected by special needs can connect with their local Child Find agency to find out more about how children can receive these services. (Our local community centered board, Imagine!, has a great list of many community resources and phone numbers including local Child Find offices here.) Social Emotional support can be part of a child’s IFSP, or Individualized Family Service Plan, which documents the services a child needs before he or she turns three. Social Emotional support is only one of the services covered by Early Intervention Colorado. As needed, children can also receive Speech and Language Therapy, Occupational Therapy, Physical Therapy, Developmental Intervention and more.

What are common ways S/E support fits into a child’s program or IFSP?

S/E strategies on a child’s IFSP are often ways to help a caregiver manage behavior, encourage language and communication, and support appropriate rich interactions with learning environments and people. Often, the strategies are used to empower the other therapists on the team: by addressing behavioral challenges and the ways they interact with language and social interaction, the behavior analyst can “free up more time” for other therapists and family members to provide more therapeutic interaction with children.

Children with autism often benefit from naturalistic teaching of skills across many domains, peer mediated instruction (involving siblings and community peers in therapeutic interactions), and teaching (or providing opportunities for practicing) specific skills that are missing or not fluent. Read more about the evidence-based strategies recommended by EI Colorado when autism and related challenges are present, in Early Intervention Colorado’s Autism Guidelines. A Behavior Analyst can help a team understand when, where, and how to incorporate these “evidence based” strategies in collaboration with a child’s other therapists. 

Who can provide Social Emotional Support?

A Board Certified Behavior Analyst (or BCBA) is qualified to provide Social Emotional Support in Colorado during early intervention. As a BCBA-D or doctoral level BCBA, I provide services directly in the family’s home or community with the child, caregivers, and occasionally, the child’s other therapists. The behavior analyst may collaborate with providers including the child’s family, Speech and Language therapists, occupational therapists, physical therapists, and medical or mental health professionals if needed. There are many other kinds of providers of S/E, and readers can learn more about them here.  

When should S/E be provided?

Earlier the better: Prevention is cheaper and more effective than reacting 

When community childcare providers and families learn preventative techniques that promote language and social interaction, they also gain strategies that will be useful soon, if not right away, to minimize, respond to, and support children through, behavior challenges. If a child could benefit from social emotional support, it’s a myth that a family or team should wait until it gets worse. Ask for help now. Even before a child turns one, s/he could benefit by caregivers learning ways to provide social emotional support.

What if it’s too late? My child’s already turned 3.

It is never too late to learn more about healthy social emotional development, or to support a family member’s behavioral wellness. The impacts of intervention for increasing language, play, social skills, are more powerful the earlier it begins, but these skills can be supported no matter when the intervention starts. Cusp Emergence offers behavioral wellness intervention and support across the lifespan.

Transitioning past age 3

In Colorado, S/E support – at least that part of S/E that is covered under Part C services by the IFSP- ends at age 3. But a child’s needs do not end on his or her birthday, and neither does a family’s need for support. Early intervention providers generally do their best to provide a great transition report that a school team can use moving forward if preschool is appropriate. 

Doing more to support a family through transitions

Families especially benefit from transition booklets that are prepared by their S/E therapist, in family/community-friendly language. I call these my “Go Team Timmy” booklets. They explain, using pictures and simple instructions and examples, how to keep meeting children’s needs after intervention ends. One email from a grateful parent came to thank me after she took her son on vacation to visit family. At three, he did not speak and had poor motor control, and his hair-pulling and biting had been so severe and challenging that other children avoided him. This was especially sad, because he loved other children and his goal was their affection! Thankfully, the behavioral strategies had been effective in teaching him alternative ways to get children’s attention. He just needed practice, and he needed prepared play partners who were ready to use compassionate easy strategies to help him give high fives instead of grab peers’ hair. So I was thrilled to read that the young mom had sent the booklet ahead of time to her aunts and uncles before the visit. Young cousins read it with their parents and learned how to hold out their hands and give high fives, how to encourage play, and how to have more fun with the child. “Even though one of the cousins had a HUGE bow in her hair,” wrote his mom, “Timmy never grabbed it! They played and laughed and had a great time.”

Educating those important to a family and community, not just the child

Education and transition booklets can also help prepare community members such as teachers, day care providers, grandparents, respite providers and babysitters, how to support a child when the therapist is not there.

 

Stay tuned for more on strategies to support Social Emotional Support through the lifespan!

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