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Monthly Archives: September 2014

What’s your story?

22 Monday Sep 2014

Posted by kolubcbad in Uncategorized

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Today’s message: when someone wants to tell their story, let’s listen. It’s there even if we never get the chance to hear it so first, please be kind.

Here are two powerful stories from two young men who each shared a story with their classmates. They’ve both faced challenges, although their diagnoses are about as different as they could be.

Click here for a video made by a college student with Asperger’s on dating.

Next, read about an unforgettable young man with Treacher Collins Syndrome and read his letter to new classmates, here. And if you’re interested in learning more, September 2014 is Craniofacial Acceptance Month.

Everyone has a story. Everyone’s story matters.

So we have this in common! We are all human beings and we all have our own stories. Do others know your story? Is there more to your story than others know? Children of all ages keep teaching me the answer is usually yes, there is more. What I’m showing you now isn’t all I’m capable of. What I’m telling you isn’t all I have to say. What I need to learn is bigger than your goal for me this year. I want to be able to do more than what I can ask for today.

“I’m invisible,” the tall lanky adolescent said out of nowhere. We were going for ice cream with his mom after peer interaction group that week. And this was something new. I glanced at his mother. She was intently watching her son, ready to comfort him or to try, or to suggest a strategy. We had worked on social interaction skills before, building on his skills little by little over several years. He had mastered learning to approach others to start a conversation, and learned to “read” their social cues as their complex nonverbal behavior telegraphed their boredom at an old, familiar topic. He learned to say “good game” instead of punching winning play partners. He had used these skills like a pro today. Had something gone wrong that neither adult had observed?

We didn’t know. Carefully, his mother said “I see you, champ! Your friends did too- you did a great job. Especially when you celebrated with them after the game today.”

“They’re not my friends. They are my peers. I don’t want peers! I want to date GIRLS!” His voice grew louder and sounded pained as he broke into a run toward the family’s driveway. His mother stopped instantly on the sidewalk and sank onto a bench nearby. She cried softly. “When he was first diagnosed, I thought he would never be able to talk. Now he talks circles around all of us, in every topic I can think of– but never in a million years considered that he might one day think about dating.”

His mom is not alone.

Sometimes our diagnosis, or a physical difference, makes us seem invisible to others.

Sometimes our diagnosis leads others to focus so much on one aspect of our whole self, that they forget about the other parts of a person. For instance, although meaningful relationships are important for EVERYONE, sometimes we forget they would be just as important for someone with Autism.

Diagnoses are sometimes used to label physical differences. For example, I know a great kid who was born with a craniofacial structure that’s really different than most. He’s diagnosed with Treacher Collins Syndrome, but his diagnosis has nothing to do with his ability to be a great friend or do well in school!

Although everyone has amazing potential, their potential—and their story—is often hidden. Not everyone gets a chance to share their story. When they DO get a chance, it might already be too late! And without hearing the story, sometimes people react to a difference. When we react too quickly, we might judge others, or make judgments about what others can do before we even get a chance to hear their story.

First, let’s be kind.

Welcome back!

11 Thursday Sep 2014

Posted by kolubcbad in Uncategorized

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Tags

ABA, behavior analysis, cusp emergence

What have you been up to? Cusp Emergence has been busy in Colorado. Some of our latest ventures include consulting for autism agencies; supervising clinical psychologists seeking mentorship as they learn how behavior analysis can benefit their practices; and receiving and providing continuing education. At the same time, Cusp Emergence continues to educate community centered boards about behavior analysis and its role in early intervention and the IFSP. Here are some of the lessons learned over our past year and a few things we’re looking forward to. Be well!

  • In rural communities, behavior analysis and ABA are still new- even in communities only a few minutes from Denver.
    • Are YOU new to ABA? Try this Parent’s Guide to ABA available for download
  • Early intervention can make a difference even before the child is old enough for a formal diagnosis.
    • Read some new and encouraging results of VERY early intervention implemented by parents
      • Cusp Emergence provides trainings on early intervention in children with suspected symptoms but no diagnosis. Contact us to find out more!
    • There are still not enough BCBA’s in Colorado.
      • Find a BCBA here
    • But as insurance companies begin to reimburse for ABA and as school districts gain familiarity, more and more individuals are excited to go back to school and receive education in behavior analysis.
      • Clients and their families should do their homework and check out references, credentials, experience, and expertise of a behavior analyst before hiring. Find approved university training (including many online programs) in behavior analysis
      • Download guidelines for Insurance coverage of ABA Treatment in Autism Spectrum Disorders

UPCOMING EVENTS:

Check out the community calendar maintained by Boulder and Broomfield’s Community Centered Board, Imagine! You’ll find monthly dates for Dr. Jeff Kupfer’s free class on Building Cooperative Behaviors (the next is September 24, 2014 and attendees can use the calendar to register online). You’ll also find out about diverse events including classes from the Association from Community Living, various parent and adult support groups, yoga for children with special needs, and events from the Peak Parent Center (including an upcoming webinar series on the IEP process).

Firefly Autism is holding an 11th birthday bash at Denver Children’s Museum on September 26. This sensory-friendly night should be comfortable for children and their families and friends. Come for the cake, Mickey the Clown’s balloon animals, and fun!

Recent Posts

  • Have you ever taken an on-demand workshop?
  • What does a horse story have to do with ethical practice of behavior analysis in trauma prevention? Find out at Stone Soup 2022
  • New 4h course: Autism, TIBA and Ethics
  • Get ready to learn about ASD and trauma
  • 25 Things I Want You to Know: Ways I use trauma to inform my practice of behavior analysis

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