Monthly Archives: September 2017

Part 10 in Trauma-Informed Behavior Analysis: A behavior analyst walks into a hospital

29 Friday Sep 2017

Posted by in adults, Behavior Analysis, behavior cusp, Behavioral Cusp, collaboration, Community, data, hospital, trauma, Uncategorized

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This article is Part 10 in an ongoing series about ways that behavior analysts can practice in a “trauma-informed” way. Considering that behavior analysts need to be ready to participate with medical and other providers, this article shares some lessons learned about becoming involved with the medical team. Whether your client is going through trauma or not, it should be helpful. But it’s particularly important for my clients who are being treated in intensive settings for their mental and medical health (often resulting from years of trauma). Be well, Dr. Camille Kolu Ph.D., BCBA-D

One of the ways I like to learn from others is hearing their “lessons learned”. By listening to them share what they have learned and what did or didn’t work, I can hone my own role and be more prepared the next time I enter a similar setting. For many of us, the mental or medical hospital is a new frontier. What can we behavior analysts can do to help in this type of setting?

I think about my role this way: As a behavior analyst, I am not the person’s medical doctor. But we often need to collaborate- and yet most medical professionals are not extremely familiar with collaborating with us. What can I do to support our mutual clients, making their healers’ work more effective?

Here are some ideas that have helped me to integrate into these settings more effectively. In some cases they are lessons I learned when I failed to do something up front that could have made a marked difference later on. In all cases, we have an ethical imperative as behavior analysts to get a medical perspective (or to rule out medical concerns) when there might be a medical component to behaviors that are challenging… but most home and clinic based behavior analysts don’t typically work in the hospital settings.

Continue reading →

Part 9 in Trauma-Informed Behavior Analysis: On intervention for fetal alcohol exposure

18 Monday Sep 2017

Posted by in adults, Behavior Analysis, children, Early Intervention, Education, enriched environment, FAS, FASD, Fetal Alcohol Spectrum Disorders, risk assessment, self injurious behavior, Social Interaction, teaching ethics, trauma, Uncategorized

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Early intervention after an unfair start in life: Fetal exposure to alcohol

Those of us who work with people who have lived through adverse childhood experiences are familiar with the importance of individualizing treatment. We can do a lot of harm if we don’t consider what someone went through in life, or if we assume that one child’s preferences and needs are similar to those of another person.

Of course, this series about trauma has emphasized that it is the responsibility of ANY behavior analyst to individualize treatment, to consider the history of a client before moving forward with treatment, and to treat more than the “local” functions of behavior. Unfortunately, it is easy to miss the importance of this component of assessment and treatment, especially for new behavior analysts who have gained their “hours” working with highly similar clients, working without supervisors experienced in a diverse clientele, of without any supervisor or instructor who appreciates experimental as well as applied behavior analysis. One of the ways we find out more, is to go to the literature. This may be easier said than done, and an example of successfully data mining for this topic is provided toward the end of the article.

Today’s discussion involves clients who have been affected by what’s known as “Fetal alcohol syndrome”, or exposure to alcohol in the womb.

This is more than adverse childhood experience, for it goes back further in development, perhaps even as early as the neural tube (which will give rise to the spinal cord) and other important structures were being formed. This kind of exposure can affect an individual for their entire lifetime.

So we can consider it an adverse experience, although it happened even earlier than what we think of as “childhood”, and it has long lasting consequences, altering the way someone will learn and interact for the rest of their life.

Can we treat behavior after this condition? Continue reading →

Part 8 in Trauma-Informed Behavior Analysis: When a label masks needs

12 Tuesday Sep 2017

Posted by in Behavior Analysis, behavior cusp, Behavioral Cusp, children, Community, Education, trauma, Uncategorized

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Buzzing underneath: Wisteria, the bees, and the fly

When you look at this picture, what do you see? wisteria.jpg

When I look into this painting I see pieces of my family’s home.

I see my mother and how she loves wisteria; how she tends it so carefully; how she protects it every year from the freeze. In Texas the freezes may come far between and at strange times. If we can we protect what we love.

When I see this painting I also see through my father’s eye, for he took the photograph on which my painting is based. I look through his eyes and notice how he sees a story in everything.

Some people see other things.

To some it looks beautiful and calm on the surface. Soon, this tree will be getting ready for its annual sleep, when it will look – for months—like a dead thing. But at a certain time of spring, its glory may return (if my mother saves it). And it will become alive with something you don’t see:

At a certain time of year, if you wandered nearby and stared closely, then underneath and within and all around the blossoms that seem like you could just touch them, this tree would again be swarming with bees.

So there are those of us who wouldn’t be able to lean in, to breathe deeply of its fragrance.

There are those of us with life threatening allergies to bees!

And some of us derive our fear not from specific allergies – and to us the stimulus is not exactly the same as poisoning us – but is still just as scary. Perhaps this can be overcome. Perhaps I can use my behavioral skills to get you closer and closer to a bee. Perhaps you’ll hold one in your hand, someday.

But for a moment I just appreciate the reasons some people are scared to approach what others find beautiful, and can love without abandon.

Some troubles are only seen underneath layers of other showy blossoms.

Some are not seen at all.

I think “showy” is such a descriptive word. During certain childhood years of mine, mom studied botany and carefully “keyed out” plants on the dining table, painstakingly identifying each tiny part, comparing each to a photo in her book, making her own drawings and descriptions. And this was just fascinating to childhood me.

Truly, it did not reduce my wonder at their beauty—to discover all the names and parts and the inner workings.

If anything, it heightened it.

Today sometimes I think about that when I appreciate the wonderful complexity that is a person.

Sometimes “behavior analysts” are thought to be incapable of appreciating the emergent wonder that is behavior! But naming all the functions, carefully looking at how the environment exquisitely shapes the behavior of a little child growing up, this only increases my fascination with people and the beauty in each person.

Each child’s history includes millions of moments, genetics, their surroundings, and more… all the things that made up their world.

Buzzing underneath: But why?

Something erratic and buzzing intruded on my thoughts this morning, startling me out of my contemplation while driving to see my client.

No longer focused on the road (and the flowers I’m painting this week), I looked around frantically to isolate the buzzing sound.

It was just a fly.

But for a few moments I was pretty distracted!

I was undaunted to get him out, whatever I did. It took a little while. I noticed a slight elevation in my heart rate, a lapse in my concentration.

And it was just a fly.

What if it was a bee and I was allergic? I imagined myself allergic to something, in that closed space with me, and me, driving, unable to get myself away.

Recently I watched a boy in a 2nd grade class who had been labeled with “ADHD”.

He moves a lot.

He can’t sit still.

He’s pretty “oppositional” and “defiant” too.

He gets distracted. He argues. He picks fights. And he never ever brings completed homework to school.

But I know a secret.

He moves a lot… between family members.

Some of them yell and hit each other.

Sometimes they sleep in their car.

Sometimes it gets impounded. I don’t know where they sleep then.

Sometimes they don’t eat much at night.

And like the flowers I love, which is my luxury to do because of my happy childhood, many of his “behaviors” are showy.

And you know what? They mask what’s underneath.

This series of trauma-informed behavior support continues with a few more “masks” in upcoming articles – such as when physical aggression masks a medical challenge, or verbal aggression masks brain injury. We’ll talk more about what we can do, and discuss the important ideas behind “differential diagnosis” and differentiating local function from historical function.

The past few years have seen an increase in child psychiatrists and pediatricians who discuss the possibility of mistaking the symptoms of serious childhood adversity for ADHD. Do we teach to sit still and medicate? Do we provide more recess? Or do we look deeper and see how we can help families, educators and teams?

A related “cusp” for educators and behavior analysts might be conducting an appropriately rigorous or well rounded functional behavior assessment before jumping into treatment. Even if we must be brief, we can ask important questions and include important people. This could make possible many next steps that would not have otherwise occurred.

See you soon, friends.

 

 

 

Flooded with support when a steady stream is required

08 Friday Sep 2017

Posted by in adults, children, Community, flood, hurricane, resources, safety skills, Uncategorized

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From Oregon to Florida, and Texas to India, people face terrible disasters.

There is trauma born of unpredictable and uncontrollable loss, and unwanted dependency on others for homes or meals after floods or tornadoes or fires devastate their neighborhoods. These events force capable people to rely on others, living out of hospitals or shelters.

And more people, including friends, families and people you don’t know, will suffer medical tragedies and unexpected losses.

There are similarities between these experiences and those of a foster kid moving into her 5th home in as many months. There are similarities between the needs of her foster parent, and those of the natural disaster victims who received initial support and are forgotten, alone, and still in a shelter.

While we were still thinking about Harvey and cleaning up homes, another round of disasters struck all around the world. Today Mexico’s most powerful earthquake in a century was devastating. And it will keep happening, although in between there will be periods of silence.

At the end of this article you can download some resources including visuals for caregivers of people with special needs facing disasters. But first, thoughts about the strange, sustained, nonlinear nature of recovery after tragedy or life after disruption.

A few months ago I attended a series of permanency roundtables. (Permanency… this is something those in flood zones or fire-ripe mountains – or foster homes – might never have.)

These roundtables were events to listen to hundreds of family members attempting permanent adoptions with children who had tragic stories of abuse, neglect, and repeated failed placements.

At these meetings, I heard a repeated chorus:

“We need long-lasting, repeated support.”

“We are grateful for what we’ve been given and still we work hard every day and night with no rest.”

“Our adoption workers mean well and yet are often quick to remove the supports that were so helpful for the 6 weeks of “honeymoon” after the paperwork was finalized.”

“It’s been months (or years) and the struggles are still there.”

“The kids seem to be really impacted by what they went through, and it’s showing up in difficult educational challenges which are hard to address.”

“The behavior challenges are still just as dire.”

“The wounds to our adult family members who tried to restrain the child in the middle of a furious display of emotion and behavior (whether these “come out of the blue” or after he spotted his biological aunt in Wal-Mart) are still healing and there are more coming.”

“The police are getting tired of the calls and the hospital we reached out to for help has started to blame us.”

“We look more normal now. But we actually have less support than ever before- and we still need help.”

Today, as we watch another storm about to hit, I think of a story I read last week, in which former flood victims shared their thoughts on how to help others.

When we want to help someone who will need help long-term, it suggested, we embrace the regular pace of helping a little at a time.

We say what we are doing and ask if there’s anything else. We mention when we’ll be back and we put it on our calendars, or set a reminder on our phone. We come back soon.

This approach reminds us a little of the preventative schedule… of using repeated orienting statements and offers of help and kindness… on a regular schedule, even when someone looks like they don’t need it. We have written about how it can be helpful for adult and child survivors of sexual abuse and dementia, Alzheimers, and those in mental health facilities. It’s helpful in schools. But it’s also important, useful, and do-able—to provide small, regular doses of whatever is helpful, to victims of disasters, and to keep doing this for a while after the visible evidence goes away.

Maybe the hard part is not what to give. Sure, we can give money. And at first, cash is more helpful than supplies because transportation is expensive and slow. But people rebuilding their lives need someone to show up after the show is over.

It might be as simple as dropping off fast food, working a shift piling up ruined household items, bringing hot coffee, or washing clothes and bringing them back clean. The hard part is to keep doing it regularly as long as it is needed.

What if I ask and they don’t tell me how to help?

If you leave near someone affected, but you were not, maybe you are thinking of asking them if they need something.

When someone has been through something very hard, they don’t respond well to questions.

“What do you need?” may produce a blank stare (from new moms with colicky babies after long hospital stays, or foster children or parents who clearly need support but can’t request it, to disaster victims who could really benefit from someone dropping by.

So should we shrug when we get that blank stare? After all, we asked and they said no, right?

Again, sometimes the most supportive thing to do is say how you’re addressing a need and when you’ll be back. “Hello. I’m here with food and next week I’ll be back with diapers. Let me know if there’s anything else you need.”

After the storm is gone but evidence is still there underneath brave faces, people won’t need a flood of support. Instead, try contributing in a steady stream… or even a slow trickle.

Resources and links

Boardmaker downloads for hurricanes and emergencies, including core words

http://boardmakeronline.com/hurricaneharvey

Social stories about hurricanes and tragedies

http://fhautism.com/hurricane-harvey-helpful-social-stories-for-children-and-people-with-autism-and-special-needs-by-carol-gray.html

Emergency preparedness for special needs, and Florida resources:

http://www.coj.net/departments/parks-and-recreation/disabled-services/resources/emergency-preparedness-for-special-needs

Oregon fire victims

https://www.bizjournals.com/portland/news/2017/09/07/how-oregons-businesses-are-helping-fire-and.html

Examples of special needs groups helping each other after Harvey

https://www.facebook.com/HarveySNH/?ref=br_rs

http://www.littlelobbyists.org/harvey/

https://www.facebook.com/Hurricane-Harvey-Autism-Relief-Group-832143870293854/